And I think that that's the best thing we can possibly do." At Harper 's Ann Patchett spins the tale of her unexpected and deep friendship with Sooki Raphael who worked as a personal assistant to Tom Hanks: "Come on, Sooki," [Hanks] said, his voice gone grand. We were in the middle of a pandemic. And he said, oh, well, ask her if she wants to send me her files. Maybe it had something to do with her job. She apologized for her late response, saying that shed had a medical procedure and hadnt been in the office. Yoga and meditation for an hour in the morning was augmented with yoga and meditation for an hour at night. I went upstairs to get the scissors out of my sewing basket. This was not a two-hour journey. In a previous interview with SurvivorNet, Cuozzo tells us how she found comfort expressing herself through her work. Our conversation was continually derailed by the television hanging over the counter. People die of this.. I must have dropped it. She shook her head, scrolling. We looked in the car. She doesnt have to go to India. But everyone showed up, all four hundred of them packed in side by side, every last chair in the ballroom occupied. And then I found out that she had had pancreatic cancer, that she had had a Whipple, that she had gone through chemo and radiation, that she had been pronounced cancer free, that her cancer came back. Sooki told me about evacuating for wildfires in the canyon where they lived in Los Angeles, a year and a half earlier, the night before she was scheduled to fly to North Carolina to have surgery. But her time as Hanks assistant brought her to a woman who would later become an invaluable friend during her cancer treatment and artistic journey. It was late and Id just finished the novel Id been reading. Much love. Just a guess. I could see what the cancers given me. As the number spiked this week at 1700 U/L, I ran out of excuses, and my PET scan on Wednesday showed a return of the cancer to my liver. Wed been introduced when I arrived but I didnt remember her name. What happens if I fall down the stairs? Who knew there was so much color? She sent updateschapter eight now, chapter twelve. The days went on and I could feel Sooki slipping, hounded by her own indecision. You might not see how everything threads together as you read along, but when you look back from the end of the story, the map becomes clear. (Her 2004 book, Truth and Beauty, describes a seventeen-year friendship with the brilliant but demanding writer, Lucy Grealy, also a cancer victim.). What Sooki gave me was a sense of order, a sense of God, the God of Sister Nena, the God of my childhood, a belief that I had gone into my study one night and picked up the right book from the hundred books that were there because I was meant to. They clearly didnt understand she intended to walk, though knowing Sooki, she probably could have carried it. Only on weekdays and not on the Fourth of July, because apparently cancer knows to take weekends off and observe federal holidays. Later that day we sat side by side on our yoga mats, Sookis head wrapped artfully in a scarf. I am now sitting at the airport waiting to catch a plane to my next opinion, at Sloan Kettering in NY. I dont know why I didnt have the sense to worry, but I didnt. This article was originally published inThe SpectatorsUK magazine. I can tell you where it all started because I remember the moment exactly. Im a vegetarian. One night after wed finished our yoga and meditation, we were lying on our mats, staring up at the ceiling. I need to go home, she said, looking at the pictures of herself she had asked me to take with her cell phone. Travel while staying at home! He was tall and slim, happily at ease, answering questions, signing books. Never want to see this again? You had it here all this time? The coat wasnt the way I had remembered it. Tell us. And this led to you meeting Sooki. Ken will like it here, too. He told me he was going to take his grandsons to the river to go boating. Suffice to say the car I was strapped into followed a tunnel down into dark and darker colors, narrower spaces. Ill get there but its no small task to try and sum this up.). Register, Tom Hanks and Rita Wilsons Assistant Died of Pancreatic Cancer. She gave us a giant furry blanket that I loved. She loved her friends, and supported them with all she had to give. Many were introduced to Sooki Raphael through Ann Patchett's book, "These Precious Days" There Sooki's grace, creativity and strength were immortalized though Ann's words. Arent we talking about doing this together?, Oh, I said. Theres a grain of truth in, Short term rentals have become a source of income for some property owners in the Santa Monica Mountains and a source of aggravation for others,, Theres a special place just a few miles up the coast, where whales, dolphins, and sea lions swim close to shore, where you can watch. The road forks and forks again. She taught ceramics classes. But I was a freshman at Sarah Lawrence, and my cousins had brought me home for Halloween my first year of college because I was really homesick. One of them was shirtless and had a colorful parrot on his shoulder. But of course I was the one who took everything. What became of them? Pay He was selected by the Tennessee Titansas the number 22 overall pick in the first round of the 2021 NFL draft. Our correspondence was less about bookstores and more about books. They would leave in four days. Its okay for us to be in the same room, Sooki said, a statement rather than a question. I said good luck because there was nothing else to say. I was no longer sick or well. He was thinking about opening one himself. She and Ken put what mattered most in the car and started driving, waiting to see which way the wind would shift the wall of flame. We wrote about artists we liked, about Pantone and the color wheel. The paintings came from a landscape of dreams, pattern on pattern, impossible colors leaning into one another. It has been an exercise in creative storytelling to try to think up more and more reasons why the number might rise while the scans (CTs! She even dedicated the front cover of her new book to Raphaels lovely painting of her dog. He's really interesting. About a quarter of the trees were down. They were lucky to get up in the morning to fly across the country so Sooki could have a pancreaticoduodenectomy, also known as a Whipple procedure. I woke up the dog and the three of us left in the darkness. Again it would appear this story had reached its conclusion. She was an expert in dealing with the medical system, after all. may 21, 2019: Thank you for your concern about my medical procedure. . Walking backward is an excellent means of remembering how little you know. Sooki thought about it, or she thought about having to tell me. When it. 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The world that Sooki inhabited was electrified by greens and blues, purple bougainvillea draping over hot-pink walls, colors too vivid to be explained. Theyd fallen on the mailboxes. I never cry, and yet I had plans to do nothing else for the rest of the day and maybe the rest of the week. They both had the coronavirus. Someone wound the clock and suddenly the second hand, so long suspended, began to tick again, pushing us forward. I cant sleep through it.. Join The Spectator community and view or post a comment on this article. He got me a can of ginger ale and I tried to eat half a banana. This was what we did at the end of the day. The same trial she was part of in Nashville had finally commenced at UCLA, twenty minutes from her house. The bookstore was closed to the public, but we were still shipping orders. It had been happening for a while. Dont worry about it, Tavia said. She was looking to get into a clinical trial for recurrent pancreatic cancer and not finding one that had room or matched her cancer. We talked about art. PATCHETT: Yeah. I once invited the daughter of a woman who ran a lecture series in Pittsburgh to live with us when she found a job in Nashville and couldnt find an apartment. He was in Nashville. With every passing day I seemed less able to say, Do you want to talk about this? . This is whats been missing.. We took turns cooking or cooked together. How Much Is A Raphael Painting Worth? The most important human qualities were being applied to this form. Solo exhibition of paintings by Sooki Raphael on view at ROSEGALLERY. Sooki, in her eye mask, was lying so serenely beneath the furry blanket she had brought us from California that I wondered if she was dead. Now for no particular reason I changed my mind. I floated upstairs in a world that would not stop changing. At the country club in Connecticut, the event organizers began to apologize as soon as we were through the door. Sookis two sisters, one in Connecticut and one in Massachusetts, could meet them there, a family reunion at the airport. She was going to be stuck in a chair all day, which was why it was necessary to do it again at night when she got home. And despite the fact that cancer has essentially been her whole life, Cuozzo has recognized herself as a lot more than a diagnosis by focusing on her life as a mother and an artist. Rita Wilson recently posted a tribute to her friend, Sooki Raphael, who painted throughout her treatment for pancreatic cancer. Like most of her paintings, the artwork from the exhibition is full of color only a soul eager to see the beauty in every day could translate onto canvas. Are you okay? I asked. Karl and Sooki came in the back door together in the middle of a conversation. Then she went downstairs and went back to sleep. In a recent post made to her official Instagram, the caption echoed this sentiment of Raphael sharing her unique perspective of the world through her art. After a while she drifted up to the kitchen, taking a stab at the half of banana I had abandoned. Once she gets here and sees the way things are, shell be fine.. She was painting. Our house was a holding pattern, a neutral space without expectation where all that mattered was her recovery. By the time I was done signing books that night, the event I had scheduled in New York the next day had been canceled. The essays range in subject, but often consider relationships in Patchett's personal and professional life, including with her father and stepfathers; her decision not to have children; the close friendship she develops in the early days of the COVID-19 pandemic with Tom Hanks' assistant Sooki Raphael. They had recovered. An epilogue describes how before Sookis death they manage a day on the beach and a celebratory exhibition of her paintings. It was anchored by a quarter inch of hair at most but it was indeed anchored. It had been languishing in a pile by the dresser for a while, and Id left it there because of an unarticulated belief that actors should stick to acting. We had been in some scrapes before. As soon as the roaring thunder of approval eased, he pointed at me and said, She doesnt have any questions.. Sooki and I needed the same thing: to find someone who could see us as our best and most complete selves, writes Patchett. No one could keep up with her. Many people loved it; some dared to hate it. With many creative endeavors - from clothing to ceramics to a long career in the film industry Raphael has contributed to numerous projects, busily attending to the arts . When it was over, I managed to make my way into the shower, perhaps the biggest single accomplishment of my life. Susan Joan Sooki Raphael of Topanga, CA passed peacefully on April 25th surrounded by friends, family, color, light, joy, and love. Its too weird., There is no weirdness left between us, I said. Youre detoxifying all your inner organs.. When the event was over and more pictures had been taken and everyone had said how much theyd enjoyed absolutely everything, Tom Hanks and his assistant and I found ourselves alone again, standing at the end of a long cement hallway by a stage door, saying good night and goodbye. It turns out that the trial that they were running at the hospital where he worked was exactly the trial she needed. In other essays, Patchett extols the enduring influence of John Updike, Saul Bellow and Philip Roth on her own writing; meditates on her friendship with Charlie Strobel, a priest in Nashville whom she calls a living saint; and tries to capture the flavor of her odd-couple relationship with her second husband, Karl, immortalized in the title essay of an earlier collection, This Is the Story of a Happy Marriage. As a medical doctor on staff at the Nashville hospital where Raphael was treated for advanced pancreatic cancer, he plays a crucial role in These Precious Days., Finally, theres that essay. How Does the Story End? Could I meet him at the bookstore, Parnassus, in half an hour? It had been no more than seven minutes start to finish. I told them that when I was a child, my sister and I would come to the Ryman on Friday and Saturday nights with the man who was then the house doctor at the Opry. Was this what COVID-19 felt like? I cant tell you how appreciative I am. I had never found a way of asking what having cancer had been like for her, or what it meant to so vigorously refuse the hand you were dealt. They knocked one another down like dominoes. This was the closest I could come to understanding what happened to Sooki. How do you fly from Nashville to New York in a single-engine plane for a two-hour visit? But any story that starts will also end. They have it, she said. There is another guest suite on the main floor and we live on the top floor. Ken would come later. I caught an early flight home. I can motivate myself without a deadline or a contract. She gave me the number and I called it from the house phone, hoping wed hear it ring. He claims our lives are better for all the people I bring into the house. Rene Fleming spent two years in Germany studying voice while she was in her twenties. A year and a half had passed since I had picked up his book in my office, and this was where it had taken me: Tom Hanks was willing to read The Dutch House. My childhood best friend was staying with us while this discussion was going on. Hey, how are you? She lugged her suitcase out to the car without my knowing it. Sparky had crawled onto my chest and gone to sleep. There is Tom Hanks's deceased assistant, Sooki Raphael, protagonist of the title essay that went viral a few months ago when it was published by Harper's, who had gone to Nashville for her . She was to stay in the trial, three Wednesdays on, one Wednesday off, until the regime was no longer effective or, to put it another way, until she died. Wednesday was chemo. The cell-phone case also served as her wallet, containing her credit cards, cash, IDs, insurance cardseverything important. She was the New York City Bat Lady at 21. People are not composed entirely of their facts, after all. Sooki came to Nashville and stayed in one place, no more movie stars, no more trips to Morocco and Tan-Tan. That was the point of everything. So the trial was supposed to start at UCLA a couple of weeks later. Her sisters were in, her mother was thrilled. Then this: june 21, 2019: As of last week, my six-month chemo run is done, and I had a follow up CT scan. Sooki had brought her computer with her. Whether you loved it or hated it may depend on your feelings about celebrity culture since the benevolent presence of Hanks and his wife, Rita Wilson, hovers in the background. New This Week; Available Now; Plant Types Karls cousin was visiting from New Mexico, sleeping in the other guest room. She wrote her thesis on bats and rabies. She told me that she had to put Sooki on a leash when she was little because she ran so much. How it happened is told in the title story ofThese Precious Days, Patchetts second collection of essays. Twenty-two sessions down and six to go. He was watching the weather. I made it a point not to tell Karl sad medical stories at the end of his long days of sad medical stories. I presented him with the studies from Johns Hopkins. I could have forgotten Sooki altogether in that moment, because even though I followed her story with interest, it was one of many stories. I was trying to read her lips. He wanted to know whether I liked owning a bookstore. She must miss all those people she so rarely spoke of. Sookie paints and paints and paints. I didnt know you had a husband!! I pushed my face into his shoulder, apologizing. He uses the library table to spread out his papers. I can write an entire novel without showing a page of it to anyone. I keep throwing things out. It hadnt occurred to me that he might say yes. This is what its like to write a novel: I come up with a shred of an idea. They arent going to give you her wallet, I said. All the people who love me and how hard this has been for them, the cancer. The problem wasnt how the trip would be organized, but what it meantpandemic, cancer, ninety-four. We both agreed that if this was the brink of extinction, it was nice to be together. It wasnt that I could kill someone; it was that I could kill her. Forget that. It meant she didnt have to sit out chemo for a week. Ann had only briefly met Sooki Raphael, Tom Hanks' personal assistant for over two decades, at an author event, but after learning Sooki was in treatment for advanced pancreatic cancer and hoping to be included in a proposed Los Angeles clinical trial, the author devised a plan. She had made up her mind that it was going to be okay. They were on their porches, laughing. I tried it but it didnt work. He talked to his patients on the phone. Those she won. Well, over the next few minutes, we're going to revisit the moment I did admit that there is one author whose books I am guaranteed to gobble up, who I will read every time - Ann Patchett. I will pick you up very late on Tuesday and take you to see Johanna on Wednesday. She was indefatigably pleasant and warm while maintaining her distance. And if I did have a favorite, I definitely would not admit it publicly. I paid the check. She would pour color into my inbox for a while and then be gone again. I went to the grocery store and piled up the cart. Patchett is so 100 percent a writer that you get the feeling that her life doesnt happen unless she writes about it. Not everyone is like this. "Uncommon Type." Sooki was Tom's assistant. Or maybe it wasnt as bad as that. A man answered. Karl was sitting on the front porch and he called for me to come out. It has to be one of the most extraordinary stories of lockdown how Tom Hanks's assistant Sooki Raphael, undergoing treatment for recurrent pancreatic cancer, came to be living in the basement of the novelist Ann Patchett and her husband Dr Karl VanDevender. The truth was that I had no idea how Sooki was doing, and I had no confidence that she would tell me. That was my reward. Its so important to twist this way, the gentle voice of the yoga teacher reminded us. Sparky Walks the Neighborhood with Ann, Nashville 2020. The trick wasnt getting the mushrooms. Sookis loving memory will live on in her husband Ken Wheeland, son Cody Wheeland, his wife Sara Wheeland and their children Anja and Oliver, her daughter Alison Villalobos and husband Luke Villalobos, her mother Miriam Raphael, her sisters Judy Raphael and Ruth Raphael, her stepbrothers Michael Fishman and Philip Fishman, and stepfather Ted Fishman an amazing circle of friends and extended family. But months later there he was again. People are not characters, no matter how often we tell them they are; conversations are not dialogue; and the actions of our days dont add up to a plot. We were loaded with plans in those days. If there were too many people there, you managed to crop them out. We left early, taking into account the traffic that turned out to be eerily absent. She made wedding cakes that tasted as good as they looked. Tell me how you know her again? he asked. Sooki hadnt lost weight but she was losing her ability to project her voice. After her first round of cancer, while she recovered from the Whipple and endured the FOLFIRINOX, she started to paint like someone who had never stopped. Somehow I imagined that she had mentioned she was in a clinical trial in Nashville but not that she was living with us, which didnt feel like too much of an evasion, seeing as how she managed to live with us in the quietest way imaginable. Paintings by Sooki Raphael. We talked about singing and touring and about the Opry. Shed worked on a documentary about George Romero called Document of the Dead (she was a zombie in Dawn of the Dead). 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